Hello my friends,

I hope you are both feeling better.

Alas, last night I had a big setback because I am getting off a horrible med that made my "t" worse. Rather than remaining calm and taking my own advice, I started to get freaked out. As soon as I did my little "self talk" exercises, I was able to go to sleep.

Moral is, "t" is an on going challenge but I wish quieter days ahead for us all.

Please let me know how you are doing.

Hugs, Marcia

Marcia/Chris

Glad to hear you are feeling a little calmer Marcia. You are always boosting others with your kind words and I look forward to hearing from you but almost forget that you have you bad days aswell so please accept a big hug from me today.
I was at ENT Clinic on Thursday and stilll have ear infection. They keep cleaning my ear and giving me more antibiotics but I might be referred to ENT again next week as it's not clearing up. I could really cope better if my ears did not kick off with sound. In my left ear (I think) as well as some high pitched T I seem to have now a 'tune'. A few notes low pitched sounds that play over and over again. My head also feels so uncomfortable. My right ear only really make a sound with sound although in the quiet I can hear tinnitus. Music when I try to listen sounds so distorted. My ears just whine on.
Have you heard of diplacisis ?
I have come off the Amitriptyline as I convinced myself that it caused ringing in the ears as it was cited as one of the side effects. Mind you, you would not take another pill in your life if you believed you could get everything that is listed. Doctor gave me a supply of diazapam to take only when I feel agitated. Have only take 1 so far since Tuesday. The sensitivity to sound and distortion is really the killer for me. Went to friends house last night and 4 of us talking together for a couple of hours really did my head in. So uncomfortable. I cannot bear the thought of being this uncomfortable for the rest of my life. My ears and head feel so sore. See clinical psychologist on Tuesday aswell. Wearing my splint at night from the dentist to so me clenching my teeth. I am really sick of hearing these noises and still find it hard to just accept I have this condition. I long to hear normally again, and get so annoyed when ents say my hearing is fine when clearly its not. Any way enough for now
Take good care of yourselves
Your friend Sara

Hi to you both, Sorry to hear that you have had a bit of a relapse Marcia, so many meds seem to have T as a side effect, Wish I could do your self talk although my psychologist did give me a relaxing C.D and it seems to calm me down a bit, it,s some guy who sounds like John Markovich going through the tensing muscles etc, The med that you came off, was it an anti.d that calmed your T down a bit. My anti d seems to have calmed me down a bit but my T is just as loud if not louder, but evrything I take seems to make it worse or it could be just me. Sara I have not heard of that thing that you mentioned and yours does seem to be different , maybe when the infection has gone you will be okay, at least the infection will go it has to eventually and the T may go then, Try to think of that but it is awful, I have been very low lots of crying, went out shopping today with my Daughter and could hear this wretched noise all the time even though the shopping centres were noisy. Are you still taking the Mitrozpine anti d Sara I am and I wonder if that makes it louder and I mentioned that to the Doc but they always say no,it,s great to hear from you both and I am glad to have 2 friends out there in cyberspace, we couldn,t have done this years ago, Take good care of yourselves from your friend Chris

p.s Marcia I emailed you at your private email address did you receive it.

Hello Sara and Chris,

I am so sorry not to be able to write more but I have to sell tomorrow at a local flea market to prepare for my upcoming move. I am a "hoarder" so itis very difficult for me to part with some of my treasures. My "t" is definitely related to my stress level, which right now is rather high but because I am soooo busy I am distracted from the weird noises in my head.

I pray both of you feel better soon and will look up diplacisis Sara after tomorrow's fun and frolic at the flea market.

Chris, I did not get your emal. My address is:
major1989@gmail.com so please try again.

Take care and please hang in there.
Hugs, Marcia

Thanks Marcia, Good luck with your sale, I will email again to you but my info did say it had gone, My email is kris.trev1@bigpond.com Don,t worry if you are busy, I will always be here,
Cheers for now chris

Hello Marcis and Chris,

Hope you two are OK. I think my ear infection is clearing my ear (left) feels better, although I still have ear ache in both ears. It is still making a rediculous noise though, in fact as well as some high pitched tinnitus I have a definate tune going on which is really getting on my wick. When I'm outside or in the car the tune gets really loud. The right ear has a strange echo to it and both ears whine and my hearing feels distorted all the time and is really loud. I'm still taking the Mirtazapine, one at night which gets me off to sleep and have resisted taking the Diazapam for five days now. I still cannot imagine getting used to this as mine seems to change all the time depending on the enviorment I'm in, whether I exert myself or if I'm stressed. It takes very little by the way to get me stressed. Running a bath is still horrendous but I'm having a one every night and deliberately listening to it and at the same time talking to myself through the discomfort and telling my not to go into a state of red alert. They say the less you have a bad reaction to 'it' the easier it becomes. Hard to actually believe at the moment. I'm really trying to distract myself but it's soooo hard. I hate it. I just wish for even a slight improvement to give me hope that I might be able to be the happy person I was. I had a little cry yesterday Chris and thought also of you. Hope you are OK. Hope you enjoyed your flea market Marcia and are also OK.
I;m at ENT clinic tomorrow so will update you after that.
Take care my friends
Sara

Sara - Chris and I, and all who read this share your aggravation with this, are worried how you are so please let us know.
Your friend, Marcia

Sara, Yes please let us know how you go at the ENT, Don,t hold back too much on the Diazapan, it does calm one down for a while, and you won,t addicted if you limit them, I take ativan which is stronger I think but limit myself to 2 a week , and at least I get a couple of days relief as they make my T quieter. I also take Mirtazapine, for sleep but they don,t always work for me, but I have always been a terrible sleeper,
So don,t despair I am sure it will get better in time, I am saying that to myself also as I sit here with mine screaming in my left ear, playing a strange sound round the back of my head and slight hissing in my left ear.
Best wishes to you and try to keep reasonably calm
your friend Chris