Approximately one in 1,600 children is born moderately to profoundly deaf because of a genetic cause.

Deafness in young children can be associated with other medical conditions, which is a type of deafness called 'syndromic deafness'. These additional conditions are usually of no concern, but it may be important to identify some. For example, someone with Usher syndrome has deafness from birth, but will also lose their sight gradually.

For more information about Usher syndrome, see our factsheet Deafblindness or visit the Sense website (external link, opens new browser window). 

Genetic deafness

If you would like genetic information about your own deafness, you will need to have a consultation in a genetic clinic. There are National Health Service centres offering free, genetic counselling for deafness around the country. Ask your GP, paediatrician, audiological physician or ear, nose and throat consultant to refer you.